My name is L_____ M_____ and I have luckily tripped across your fundraiser as I was doing research late one night. My beautiful 5 yr old daughter, has recently been diagnosed with Eosinophilic Granuloma/Histiocytosis and just finished her first round of radiation after 2 vertebra collapsed. She is multi-focal, with lesions in other parts of her skeletal system, but doing well with the help of an amazing doctor. I am finding out that there is so much that we don’t know about this disease and because of that her future will be full of tests and treatment. And yet we feel like the lucky ones- there are many other children out there fighting this same disease with much tougher situations. What a wonderful thing you and your organization are doing to help them!! Thank you so very much!
I have always wanted to ride the
But again, thank you so much for the insight, the planning and the vision! We are so grateful!